Welcome back to our final Monthly Round Up of 2019! We can’t believe the year is already coming to an end. We’re incredibly fortunate to have had so many amazing guests who have shared their histories, triumphs, insights, and more. We’d like to also shoutout all our listeners who make the Uninvisible Pod community what it is. We’re looking forward to many great episodes in 2020, but first, let’s take a dive into December’s episodes!
So, who did we talk to in December? We talked to Thomas Smith on his early diagnosis of cystic fibrosis, and the effect it’s had on his life; Camille Thornton-Alson on a frustrating mystery illness; sisters Trishna Bharadia and Anisha Gangotra on thriving with their respective chronic invisible illnesses; and our very own, Lauren Freedman (that’s me!), on my battles with invisible illness – and how Uninvisible Pod was born.
We hope you can tune in, amidst all the holiday festivities, and fill up some down time with these amazing stories. And who knows, it could be the perfect distraction from that dreaded annual get-together, right?!
Thomas Smith is an international consultant providing expert patient insights; diagnosed with cystic fibrosis (CF) as an infant and taking control of his livelihood in his late teen years, he is now involved with numerous patient advocacy groups that span the rare and chronic disease spectrum, with a focus on mental health. Thomas is a constructive challenger of the status quo. As in previous CF patient interviews, you may hear him clearing his throat periodically throughout this interview – it is to be expected!
Camille Thornton-Alson is a classically trained actress, coach, and teacher. A longtime friend of Lauren’s, the two met while studying abroad in London – right before Camille began a stint in Paris at L’École Internationale de Théâtre Jacques Lecoq. Following her stay in France, Camille returned home to the Bay Area and was immediately stricken with a mysterious illness…one that took her almost a decade to break through. Eventually, she was diagnosed with lead and mercury poisoning.
Join us as we revisit some past guests to discuss new topics! Trishna Bharadia and Anisha Gangotra are sisters – both thriving with their own chronic invisible illnesses. Trishna lives with MS (multiple sclerosis) and works tirelessly as a patient advocate; Anisha lives with UC (ulcerative colitis) and has also survived PTSD (post-traumatic stress disorder). Anisha was inspired by her own journey to begin teaching inclusive dance classes – which Trishna frequently attends!
At this point you’re all pretty familiar with my voice, right? Well, as we head into the holiday season and close in on our one-year anniversary (!!), we thought it was time we gave you what you’ve been asking for: more of me! This episode was initially recorded for a FB Live appearance with Naomi Batty of Holtorf Medical Group – and we had such a great chat, I thought it would make the perfect round-up for 2019 and give everyone more of an insight into my WHY – and how the podcast was born.