Endometriosis

Episode 41: Ariel of @Carpe_That__Diem, Part 2

In this second installment of Lauren’s interview with Ariel, we dig further into his conditions and lifestyle: what his advocacy work means to him, his journey through the workforce and struggle to find employment with disabilities, his experience as a service dog handler, and life with thyroid disease, bipolar II, borderline personality disorder, endometriosis as…

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Episode 40: Ariel of @Carpe_That__Diem, Part 1

If you’re involved in the Spoonie community on Instagram, you’ve probably come across Ariel L. of @carpe_that__diem, who blogs about living in a disabled trans agender body, mental health, working with a SD (service dog), and death positivity. An academic by training and trade, Ariel’s perspective is eloquent, enlightening, and engaging. He uses this interview…

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Episode 22: Ilene

In an effort to preserve this guest’s privacy, we are using an alias in this episode – an Uninvisible first! Ilene is an award-winning 6th-grade elementary school teacher. She is also a survivor of rape, “endometrial symptoms” (aka, undiagnosed endometriosis – chronic pain that was only compounded by her sexual assault), and hypothyroidism. She joins…

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Episode 21: Jameisha Prescod

Jameisha Prescod is a London-based activist who lives with lupus, Raynaud’s, and femoroacetabular impingement (FAI); she is also waiting on possible diagnoses of endometriosis and celiac disease. She is the founder of You Look Okay To Me, an online platform for pain and chronic illness that is chock-full of content about invisible illness, disability, and…

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