ehlers danlos syndrome

Episode 27: Lara Bloom

Lara Bloom is the international Executive Director of The Ehlers-Danlos Society. Finally diagnosed with EDS at the age of 24 (after many years of chronic pain and frustration), she channeled her healing into patient advocacy. Her job is to raise global awareness of rare, chronic, and invisible diseases, with a focus on the Ehlers-Danlos syndromes,…

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Episode 23: Em & Kate

Em & Kate are the sisters behind the wellness blog Two Being Healthy. Both live with lupus, postural orthostatic tachycardia syndrome (POTS), Ehlers-Danlos syndrome (EDS), mast cell activation disorder (MCAD), and cytochrome mutations (which have affected their ability to metabolize certain drugs). Having spent much of their adult lives living with and navigating the symptoms…

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