Episode 99: ENDO Black Founder Lauren Kornegay

Episode 99: ENDO Black Founder Lauren Kornegay

Overview

When she first met her new gynecologist, Lauren R. Kornegay was introduced to a disorder that was unfamiliar to her at the time: endometriosis. Diagnosed at the age of 20, she experienced the pain, struggles, exhaustion, and confusion that accompany the disease. This led her on a search to find someone who looked like her — who was also living with the same diagnosis. Each time, she came up empty-handed. Due to a lack of representation and acknowledgement of Black women affected by endometriosis, she felt entirely alone. She found herself in support groups being dismissed, accused of being racist, or chastised for speaking up about the lack of awareness of anyone who didn’t resemble the primary demographic of the disease (ahem, white women). In 2015, in direct response to these experiences, she created her own community: ENDO Black, a platform designed to connect women of color affected by endometriosis, bringing them together to heal and advocate. Her goal is not only to give women of color living with endometriosis a network, but also to raise awareness among doctors and other medical professionals of the lack of representation in reproductive health research and dialogues…so they can begin to (finally) understand that endometriosis affects women of color differently — from both a medical and cultural perspective. Lauren is also a founding member of the LOLA Collective and has recently become one of the co-founders of the Black Women’s Health Coalition.

Takeaway

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Transcript

ENDO Black Lauren Kornegay Uninvisible Pod endometriosis

Transcript coming soon!

In the meantime, tune into these other episodes about endometriosis:

Episode 22: Ilene

Episode 55: Lara Parker

Episode 56: Samantha Denäe

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