Month: June 2019

Episode 28: Eric

Eric is originally from Philadelphia, PA, and was born with cystic fibrosis. Diagnosed at the age of 1, his original life expectancy was between 10-14 years. As advances in medical treatment have moved forward, so has his life expectancy…so much so that Eric has now, at 41, surpassed his doctors’ hopes. He moved to Southern…

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Episode 27: Lara Bloom

Lara Bloom is the international Executive Director of The Ehlers-Danlos Society. Finally diagnosed with EDS at the age of 24 (after many years of chronic pain and frustration), she channeled her healing into patient advocacy. Her job is to raise global awareness of rare, chronic, and invisible diseases, with a focus on the Ehlers-Danlos syndromes,…

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Episode 26: T. Sydney Bergeron Mikus

T. Sydney Bergeron Mikus is an award-winning writer, artist, designer, model, and activist based in NYC. They live with TBD (tick borne disease), including Lyme, Bartonella, and ehrlichia, as well as POTS (postural orthostatic tachycardia syndrome). They create work driven by healing advocacy, art, and narrative as tools for change, and self-care as disruption. They…

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Episode 25: P. Brendon Lundberg

With a vision to build the safest, most consistently effective and non-invasive solution to the epidemic of chronic pain, Brendon Lundberg (a chronic pain survivor himself) co-founded Radiant Pain Relief Centres in Oregon. The centres use an FDA-approved and Mayo Clinic-tested treatment for chronic pain called Scrambler Therapy, which targets the brain’s response to pain…

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